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News & Articles

2022

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‘Rowing for Rosie’ event at CrossFit Carroll raises over $1,000

Carroll Times Herald

Carroll, IA - 11/23/2022

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Kids with a rare neurological disorder converged in Houston to meet others from around the world

Houston Chronicle

Houston, TX - 8/2/2022

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Finding the right diagnosis for one child can help millions more

Texas Children's Hospital/Jan and Dan Duncan Neurological Research Institute

Houston, TX - 5/16/2022

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Inclusive School: There is still effort to be made

Top Sante, Issue 379: April 2022 Edition

Montrouge, France - 3/1/2022

Translated with original article included

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February is HADDS Awareness Month: Local family raises awareness about HADDS

Bancroft, Ontario Canada - 2/25/2022

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2021

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À Mailly-Maillet, la chienne Noisette a changé la vie de Maxime, 7 ans, touché par une maladie génétique (Translated Title: In Mailly-Maillet, the dog Noisette changed Maxime's life, 7 years old, affected by a genetic disease)

Courrier Picard, Amiens, France - 2/9/2021

Translated side-by-side article with original reference link​

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The Foundation Collaborates to Publish the First HADDS Book:

Abled: Same But Different

EBF3 HADDS Foundation, Houston, TX  - 8/13/2020

https://www.hadds.org/abled-same-but-different

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The Foundation Confirmed its 2020-2021 Board of Directors

EBF3 HADDS Foundation, Houston, TX  - 7/20/2020

https://www.hadds.org/2020-2021-board-of-directors

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Chao awarded Philip R. Dodge Young Investigator Award

Baylor College of Medicine, Houston, TX - 6/30/ 2020

https://www.bcm.edu/news/chao-awarded-philip-r-dodge-young-investigator-award?fbclid=IwAR1zqp55akRnD4mXy6kuLJOBmUcWMVoSWfSxT7iX-4mQO8iSc21OqjVV6Ng

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The EBF3 HADDS Foundation Turns One and Celebrates Growing Community with HADDS Awareness Month in February

EBF3 HADDS Foundation, Houston, TX  - 1/26/2020

https://www.hadds.org/foundation-turns-one

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2020

2019

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A brother's love: Researching for a cure

Texas A&M University - 9/24/2019

https://engineering.tamu.edu/news/2019/09/a-brothers-love-researching-for-a-cure.html

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Blake Barney | 2019 CMN Miracle Child 

Children's Miracle Network Hospital, Salt Lake City, UT  - 7/31/2019

https://tmfhc.childrensmiraclenetworkhospitals.org/meet-blake-barney/?fbclid=IwAR3dYQutrOFovRf4Wq2JEq_e9OmDp-yPSoWHWxCbS0EomHZvN7pj_aw_DdE 

Video: https://m.youtube.com/watch?v=9iDUg-l00uM

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Texas Children’s hosts inaugural family conference for EBF3-HADD syndrome

Texas Children's Hospital / NRI  - 8/26/2019

https://nri.texaschildrens.org/news/texas-children%E2%80%99s-hosts-inaugural-family-conference-ebf3-hadd-syndrome

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Hazlet sixth-graders design motorized mini-car for 2-year-old with special needs

USA Today - App. - 4/16/2019

https://www.app.com/story/news/local/values/2019/04/16/hazlet-6th-graders-design-mini-car-2-year-old-special-needs/3436892002/

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Dr. Hsiao-Tuan Chao named new McNair Scholar

Baylor College of Medicine - 3/13/2019

https://www.bcm.edu/news/awards-honors-faculty-staff/dr-hsiao-tuan-chao-named-new-mcnair-scholar

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The EBF3-HADDS Foundation becomes an official 501c3 Non-Profit!

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Easterseals is making a difference for kids and their families

WUSA Eye-9 News - 2/6/2019

https://www.wusa9.com/video/entertainment/television/programs/great-day-washington/easterseals-is-making-a-difference-for-kids-and-their-families/65-2d3d057c-abf2-4d99-904c-9e402bf1f251?fbclid=IwAR15zKTW6iRrOKo1Wy4IWL0L355nbITUFEKNvhjo72HGvQKe-WZuHQRAbjA

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Cylindrical spirals in two families: Clinical and genetic investigations

University of Western Australia - 12/25/2019

https://www.nmd-journal.com/article/S0960-8966(19)31233-7/fulltext

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2018

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2019 Children's Miracle Network's 'Miracle Child' revealed

CBS-19 News - 11/27/18

https://www.cbs19.tv/article/news/local/2019-childrens-miracle-networks-miracle-child-revealed/501-618249310

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16-month-old Tyler girl is ‘Miracle Child’ for Children’s Miracle Network hospitals

KLTV - News - 11/27/18

https://www.kltv.com/2018/11/27/month-old-tyler-girl-is-miracle-child-childrens-miracle-network-hospitals/

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NIH's Undiagnosed Diseases Network Identifies 31 New Syndromes

BioSpace - 10/11/2018

https://www.biospace.com/article/nih-s-undiagnosed-diseases-network-identifies-31-new-syndromes/

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Dr. Hsiao-Tuan Chao awarded NIH Director's High-Risk, High-Reward grant

Baylor College of Medicine - 10/2/2018

https://www.bcm.edu/news/grants/hsiao-tuan-chao-nih-high-risk-reward-grant

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2017

How fruit flies helped to find a diagnosis for my daughter

Texas Children’s Hospital - 8/2/2017

https://nri.texaschildrens.org/blog/how-fruit-flies-helped-find-diagnosis-my-daughter

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2016

Genetic cause identified for previously unrecognized developmental disorder

Science Daily - 12/23/2016

https://www.sciencedaily.com/releases/2016/12/161223115920.htm

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HudsonAlpha researchers identify genetic variants that cause intellectual delay

HudsonAlpha Institute for Biomedical Technology - 12/22/2016

https://hudsonalpha.org/hudsonalpha-researchers-identify-genetic-variants-that-cause-intellectual-delay-in-children/

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Genetic cause identified for previously unrecognized developmental disorder

Baylor College of Medicine - 12/22/2016

https://www.bcm.edu/news/research/genetic-cause-for-developmental-disorder

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