What is HADDS Awareness Month?

HADDS Awareness Month was created by the Foundation in 2019 to rally our community around a central focus -- raising HADDS Awareness and celebrating each other!


Being part of a rare community is an opportunity to be ambassadors and teachers within local communities, educating others about HADDS.

How can you get involved?

There are plenty of ways to get involved, and the calendar of events showcases major events occurring throughout the month. Some folks participate in all events, while others pick and choose what fits with their schedule!  


If you have questions, reach out to info@hadds.org

Awareness Week

Awareness Week is a concentrated effort that encourages families to wear awareness ribbons, dress in HADDS Plaid and use their social media voices to raise awareness & fundraise!


#HADDSLOVE week is the third week of February, and was created to encourage families to  practice gratitude and express love to people that support and positively impact individuals living with HADDS throughout the year.

2021 HADDS Awareness Month Schedule FINA

Click for the PDF

HADDS Heart Award

This award is new in 2021! As a complement to #HADDSLOVE week, the Foundation would like to recognize and reward individuals that work diligently to teach, strengthen and encourage individuals living with HADDS. Families can nominate individuals for the award. 

HADDS Goes to School

Peer awareness and inclusion are very important for growth, which is why we encourage all of our school age families to host an event. 

The EBF3-HADDS Foundation was created to promote awareness, research, and support for a rare genetic syndrome discovered in 2016. 

The Foundation is a registered 501(c)(3) EIN: 83-2757964 


P: (713) 487-6005

E: info@hadds.org


Mailing Address:

P.O. Box 31602

Houston , TX 77231

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