What is HADDS Awareness Month?
HADDS Awareness Month was created by the Foundation in 2019 to rally our community around a central focus -- raising HADDS Awareness and celebrating each other!
Being part of a rare community is an opportunity to be ambassadors and teachers within local communities, educating others about HADDS.
How can you get involved?
There are many ways to get involved, and the calendar of events highlights the major activities happening throughout the month. Additional details about each event will be shared through our social media channels. Some people join every event, while others choose what works best for their schedule. You’re also encouraged to take the initiative and raise awareness for HADDS and 10q26 deletion in your own unique way—whether it’s organizing a fundraiser, sharing information on social media, or starting a community conversation. Every effort makes a difference!
If you have questions, reach out to info@hadds.org.
Awareness Week
Awareness Week is a concentrated effort that encourages families to wear awareness ribbons, dress in HADDS Plaid and use their social media voices to raise awareness & fundraise!
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#HADDSLOVE Week
#HADDSLOVE week is the third week of February, and was created to encourage families to practice gratitude and express love to people that support and positively impact individuals living with HADDS throughout the year.
HADDS Valentine
Each year we send a new and unique Valentine's Day card to ensure every individual with HADDS feels loved and included. Complete the form by
January 24, 2025.
Pen Pal signup
Build connections and friendships within our global EBF3 HADDS & 10q26 deletion syndrome community. Complete the form by February 28, 2025.
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HADDS Goes to School
Peer awareness and inclusion are very important for growth, which is why we encourage all of our school age families to host an event.