FOR IMMEDIATE RELEASE
The EBF3 HADDS Foundation Gifts $25,000 to NRI for HADDS Research
HOUSTON, Texas / July 23, 2020
The Jan and Dan Duncan Neurological Research Institute (NRI) at Texas Children’s Hospital was gifted $25,000 by the EBF3 HADDS Foundation to support the Chao Lab in its effort to further investigate and understand the effects of the EBF3 gene in individuals living with HADDS. This research contribution was made possible by over 500 donors from over 15 countries in the growing global HADDS community. HADDS families and community members were joined on Friday at NRI by the Foundation’s board of directors, and Dr. Hsiao-Tuan Chao and her research team to celebrate a shared vision and enthusiasm for continued exploration of the syndrome.
Dr. Chao, lead researcher and an assistant professor with Baylor College of Medicine, shared with the foundation that funds gifted will be used to support the development of mouse and fly models, establish skin fibroblast lines and fund neuropsychological evaluations, RNA-sequencing and lab materials. In addition to supplies, larger gifts in the future may also support personnel (research/coordinator/scientists/ interns) contributing to the research. To support Dr. Chao’s groundbreaking EBF3 HADDS research consistently, the foundation plans to make annual contributions to her lab.
The EBF3 HADDS Foundation was established in 2019 to promote awareness, research and support for the global EBF3 HADDS community. To learn more about the rare neurodevelopmental syndrome, visit HADDS.org. To participate or learn more about active EBF3 HADDS research, visit: https://www.bcm.edu/healthcare/clinical-trials/h-44396 or contact the lab directly at Chao-Lab@bcm.edu / (832) 824-8806.