Board of Directors

Ashley W. LeMaire, PhD is a native of Louisiana and has spent most of her adult life in Houston. She earned her doctoral degree in Clinical Psychology from Nova Southeastern University in Ft. Lauderdale, Florida in 2010. She completed a postdoctoral fellowship, specializing in Clinical Neuropsychology. She has worked in multiple rehabilitation settings, including at TIRR Memorial Hermann, and she is currently an Assistant Professor at Baylor College of Medicine. She has spent her career specializing in the assessment of individuals with traumatic brain injuries, stroke, neurodegenerative diseases, spinal cord injuries, as well as treatment of psychological adjustment to chronic illness.  Ashley and her husband Mark have three precious children, Julian, Collette (has HADDS), and Madeleine.

Ashley W. LeMaire, PhD


Mark B. LeMaire was born and raised in South Louisiana and has spent most of his career in Houston, Texas.  He has a background in real estate development and construction management and currently oversees the project development of multi-modal logistics centers and energy-related midstream infrastructure.  Mark has an undergraduate degree in Construction Management from Louisiana State University, a Masters in Business Administration from The University of Southern Mississippi, and a Project Management Professional (PMP) certification.  He and his wife, Ashley, are blessed with three children, Julian, Collette (who has HADDS), and Madeleine.

Mark B. LeMaire, MBA, PMP President


Paul Mastin grew up in Corpus Christi, Texas. He holds a Bachelor of Arts degree in philosophy from Baylor University, a Masters of Divinity degree from Southwestern Baptist Theological Seminary, and a Texas Teacher Certificate. He has held a variety of church and parachurch ministry positions, worked at an academic think tank, and taught as a special education public school teacher. He currently works in the transition services division of a financial firm. He lives in Fort Worth with his wife, Kelly, and their three children, one of whom lives with HADDS.

Paul Mastin, MDiv


Ivette Matias-Sepersaude was raised in New York and currently resides in Florida. After several years as a licensed insurance agent and claims adjuster, Ivette decided on a significant career change in the healthcare field. Her son Kai (diagnosed with HADDS) was the driving force behind her passion for helping other children with disabilities. She currently specializes in Pediatric Physical Therapy through the medium of Animal Assisted Therapy. Due to a desire to further her impact on the special needs population, she became a Credentialed Clinical Instructor. In this role, she helps to prepare and develop students interested in pursuing a pediatric specialty. Ivette and her husband Shane have four children, Jax, Kai, Scarlett, and Joshua.

Ivette Matias-Sepersaude, PTA


T'Mia Raynor



T’Mia Raynor is a native Washingtonian.  She has a background in Computer Information Systems, holds a Bachelor of Science degree in Information Systems from Trinity University and has spent her career working in the IT field for the federal government.  After her daughter, Portland, was diagnosed with HADDS, T’Mia has found a new love for advocating for children with special needs and blogging about daily living with HADDS.  T’Mia resides in Washington, DC with her husband, Philip, and three girls, Kennedy, Peyton, and Portland.

Mallory A. Schindler is originally from North Carolina, spent the majority of her adult life in Washington, DC and now calls San Antonio, TX home. She has a undergraduate degree in Education and a Masters in Healthcare Administration. Mallory has spent her career working for national healthcare associations and for private and public universities in Higher Education. When she isn’t supporting the Foundation, Mallory works as an executive in the EdTech space, specializing in compliance and clinical placement for graduate medical and allied health programs. Mallory and her husband David have two children, Grant (living with HADDS) and Grace.

Mallory Schindler, MHA

Vice President


Dave Schindler hails from the San Francisco Bay Area and North Carolina where he earned his bachelor’s degree in biology from Wake Forest University.  Major (Dr.) Schindler is a general dentist in the U.S. Air Force. He currently serves in San Antonio, TX where he practices and manages the Air Force Dental Service business case analysis with a $6.4B annual budget.  Since completing a Dental Public Health residency at the National Institutes of Health in Bethesda, MD, he also serves as an Assistant Professor at Uniformed Services University Postgraduate Dental College, where he teaches, does dental epidemiology research and provides policy guidance to ensure dental readiness.  Dave and his wife Mallory have been blessed with two children, Grant (living with HADDS) and Grace.

Dave Schindler, DDS, MPH, FAGD



Melissa Slick was born and raised in California. She had the privilege of growing up on a walnut orchard in beautiful Northern, CA.  Melissa is a cancer survivor and has a strong passion for life and helping others. She has a BS in Exercise Physiology and an MS in Exercise Science. Melissa has experience working with the medically compromised population, helping them achieve lifelong health and wellness through diet and exercise. She is currently working at a local gym in membership and is enjoying raising her family on their Almond orchard in Chico, CA.  Melissa and her husband, Joel have two daughters, Maisie and Evie (living with HADDS).

Melissa Slick, MSES


John M. Walton is a native of Austin, Texas. He completed his undergraduate studies at The University of Texas and earned a graduate degree in Economics and Finance from Rutgers University. John is a Certified Public Accountant (CPA) and spent his career working professionally as a banking executive and a senior manager in the oil and gas service industry. John has served on multiple non-profit boards, including the Gulf Coast Business Council, the Mississippi Gulf Coast Chamber of Commerce, the Gulf Coast Community Foundation, the United Way of Mississippi, and the Girl Scouts of America - Alabama. John also served on the Mississippi Governor’s Commission for Recovery and Renewal for Hurricane Katrina. He is married with two children and four grandchildren, one of which has HADDS.

John M. Walton, CPA

Board of Directors Advisor

The EBF3-HADDS Foundation was created to promote awareness, research, and support for a rare genetic syndrome discovered in 2016. 

The Foundation is a registered 501(c)(3) EIN: 83-2757964 


P: (713) 487-6005



Mailing Address:

P.O. Box 31602

Houston , TX 77231

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