Our story is wrapped up in love, resilience, constant calendar balancing, and a journey we never quite anticipated but one that has reshaped who we are for the better.

This isn't the life I thought we'd have. But it is still so beautiful. And she is my amazing little rare gem.

I’m a physician-scientist and the parent of a child diagnosed with HADDS. I want to share a message of hope rooted in what I know best: clinical research.