FOR IMMEDIATE RELEASE

EBF3 HADDS Foundation Turns One and Celebrates Growing Community with HADDS Awareness Month in February

HOUSTON, Texas  / January 26, 2020

The EBF3 HADDS Foundation (HADDS.org) celebrates its one-year anniversary with an announcement of an official HADDS Awareness Month annually each February. The Foundation was founded by three Texan families Ashley & Mark LeMaire, Kelly & Paul Mastin & Mallory & David Schindler that shared a passion for HADDS and wanted to ensure that the community and its providers, teachers and supporters had a centralized space to gain support and access materials on education, advocacy and research. 

 

 Though the Foundation's first year was meant to be a heavily focused on building a solid organizational foundation, much has been accomplished:

  • Non-profit status ruled official (February 25, 2019)

  • Inaugural  Board of Directors  established (March 2019)

  • Logo/Visual Identity & Brand Guidelines were established (April 2019)

  • HADDS.org, the Foundation's website went live (June 2019)

  • Inaugural EBF3 HADDS International Conference (July 2019)

  • HADDS Shop went live (August 2019)

  • Plaid Awareness Ribbon adopted #HADDSPlaid (November 2019) 

  • HADDS Donor Impact and #GivingTuesday first community fundraising campaign (December 2019)

  • Established an Awareness Month (January 2020) - See Details Below!

The first year of operation was lean in order to execute quickly on the establishing a solid base. As each year builds, so will the opportunity for community members to get involved in a more formal capacity such as social, fundraising and research committees.  Stay tuned for more information on this in the coming months. In the interim, check out the HADDS Awareness Month happenings starting February 1, 2020.

February HADDS Awareness Events.png

The EBF3-HADDS Foundation was created to promote awareness, research, and support for a rare genetic syndrome discovered in 2016.

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© 2019 by EBF3 HADDS FOUNDATION