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The EBF3 HADDS Foundation invites you to join the 6th Annual HADDS In Motion, our largest fundraiser of the year. This month-long virtual move-a-thon takes place from October 1–31, 2025.

 

This year, we aim to bring together bring together more than 100+ members of our HADDS and 10q26 related syndromes community in a worldwide movement for awareness, action, and impact. We need your help to reach our fundraising goal of $50,000!

 

Joining is easy and is a great way to raise awareness about HADDS and 10q26 related syndromes while helping support the Foundation's important work including: 


🔬 Groundbreaking research into EBF3-HADDS and 10q26 related syndromes
🦽 Medical grants for specialized equipment and family travel
🎉 The 2026 EBF3 HADDS International Conference

To fundraise, you can run, walk, bike, roll, or track any activity that gets you moving. Friends, family and supporters can contribute by donating a set amount or pledging to donate based on the amount of activity you complete. You can also participate as a fundraiser without committing to movement-based activities by simply inviting donations through a personalized fundraising page. 

To make a general donation or pledge or provide a flat-rate donation for a participant, visit the link below.

Registration opens Saturday, September 13th! To learn more, register, or donate: https://go.rallyup.com/haddsinmotion

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The EBF3 HADDS Foundation was created to promote awareness, research, and support for individuals and their families living with EBF3 HADD Syndrome, a genetic syndrome discovered in 2016.

 

The Foundation is a registered 501(c)(3).

EIN: 83-2757964

CONTACT >

E: info@hadds.org

 

Mailing Address:

PO Box 220052

343 S Kirkwood Rd Ste 105

St. Louis, MO 63122

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© 2021 by EBF3 HADDS FOUNDATION 

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