Our Guiding Principles

The EBF3 HADDS Foundation was created to promote awareness, research, and support for individuals and their families living with EBF3 HADD Syndrome, a genetic syndrome discovered in 2016.

 

The Foundation is a registered 501(c)(3) and based in Houston, TX. EIN: 83-2757964

Mission

To enhance the lives of people with HADDS through research, education, support and advocacy.

Mantra

Impacting the world together, one story at a time.


 

Vision

Raise educational awareness and funding for research so that every person with HADDS:

 

  • Has a supportive community

  • Is able to reach their full potential 

  • Has access to the most current educational/therapy materials

  • Has access to the most current research


 

Values

Ethical & Transparent: It is the Foundation’s priority to be ethically and financially responsible when advancing our mission in the areas of research, education, support and advocacy.

 

Committed: We are nothing as an organization if we are not committing our energy, talents and resources consistently towards research and education. Commitment drives progress!

 

Inclusive & Collaborative: Be ambassadors for inclusion, welcoming and facilitating an environment of hope, belonging and community for all impacted by HADDS globally.