The EBF3-HADDS Foundation was created to promote awareness, research, and support for a rare genetic syndrome discovered in 2016.

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© 2019 by EBF3 HADDS FOUNDATION 

Our Guiding Principles

Mission

To enhance the lives of people with HADDS through research, education, support and advocacy.

Mantra

Impacting the world together, one story at a time.


 

Vision

Raise educational awareness and funding for research so that every person with HADDS:

 

  • Has a supportive community

  • Is able to reach their full potential 

  • Has access to the most current educational/therapy materials

  • Has access to the most current research


 

Values

Ethical & Transparent: It is the Foundation’s priority to be ethically and financially responsible when advancing our mission in the areas of research, education, support and advocacy.

 

Committed: We are nothing as an organization if we are not committing our energy, talents and resources consistently towards research and education. Commitment drives progress!

 

Inclusive & Collaborative: Be ambassadors for inclusion, welcoming and facilitating an environment of hope, belonging and community for all impacted by HADDS globally.