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Join date: Nov 16, 2019
About

My name is Laurie. We found out early last year that our daughter, Hannah, has EBF3 mutation. The only info I had were the 4 journal articles about it that the genetics doctor was able to find. it is a giant relief to be able to speak with others about HADDS, find resources, get support and just generally give Hannah everything she needs to be successful dealing with this disease.

laurie_long
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