Join date: Nov 16, 2019

My name is Laurie. We found out early last year that our daughter, Hannah, has EBF3 mutation. The only info I had were the 4 journal articles about it that the genetics doctor was able to find. it is a giant relief to be able to speak with others about HADDS, find resources, get support and just generally give Hannah everything she needs to be successful dealing with this disease.

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