The HADDS Squad is a volunteer program that empowers individuals with HADDS and 10q26 deletion and their parents / caregivers to support the EBF3 HADDS Foundation through storytelling, advocacy, creativity, and community connection. It gives our community a voice and provides the Foundation with a powerful, authentic way to build awareness and engagement.
Who Can Join the HADDS Squad?
What do I do as part of the HADDS Squad?
The HADDS Foundation is looking for help and support with:
Storytelling & Awareness
Participate in storytelling for Foundation publications like the information packet, website content, social media, donor engagement, newsletters, and event promotion.
Submit photos and/or videos if requested to support the storytelling mentioned above.
Help answer questions or provide information requested by the Foundation for content such as blog posts when multiple perspectives would be beneficial.
Though optional, we would love it if HADDS Squad members could assist with:
Social Media Engagement
Events & Representation
Participate in virtual events such as HADDS in Motion and support fundraising events.
Engage with or welcome new families who reach out to the Foundation looking to connect directly with other families.
Assist as volunteers at the HADDS Conference if attending.