HADDS Squad Volunteer Application

The HADDS Squad is a volunteer program that empowers individuals with HADDS and 10q26 deletion and their parents / caregivers to support the EBF3 HADDS Foundation through storytelling, advocacy, creativity, and community connection. It gives our community a voice and provides the Foundation with a powerful, authentic way to build awareness and engagement.

Who Can Join the HADDS Squad?

Individuals of all ages living with EBF3-related HADDS or 10q26 deletion with support and consent of their parents / caregivers if the individual is under 18.

What do I do as part of the HADDS Squad?

The HADDS Foundation is looking for help and support with:

Storytelling & Awareness

Participate in storytelling for Foundation publications like the information packet, website content, social media, donor engagement, newsletters, and event promotion.
Submit photos and/or videos if requested to support the storytelling mentioned above.
Help answer questions or provide information requested by the Foundation for content such as blog posts when multiple perspectives would be beneficial.

Though optional, we would love it if HADDS Squad members could assist with:

Social Media Engagement

Share or repost Foundation content.

Events & Representation

Participate in virtual events such as HADDS in Motion and support fundraising events.
Engage with or welcome new families who reach out to the Foundation looking to connect directly with other families.
Assist as volunteers at the HADDS Conference if attending.

Volunteer Information

First name (of individual with HADDS / 10q26 deletion)

Last name (of individual with HADDS / 10q26 deletion)

Name of Parent / Guardian (if applicant is under 18 years of age)

Email (of parent or guardian if applicant is under 18)

Country where you live

Diagnosis

EBF3 HADDS

10q26 Deletion Syndrome

Other

Age of individual with HADDS / 10q26 deletion

In a few short sentences, please tell us why you and your family would like to join the HADDS Squad.

If joining the HADDS Squad, I give permission for photos or videos to be used for promotional or educational purposes by the EBF3 HADDS Foundation. If the applicant is under 18, I confirm that I am providing consent as the parent or guardian.