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HADDS Squad Volunteer Application

The HADDS Squad is a volunteer program that empowers individuals with HADDS and 10q26 deletion and their parents / caregivers to support the EBF3 HADDS Foundation through storytelling, advocacy, creativity, and community connection. It gives our community a voice and provides the Foundation with a powerful, authentic way to build awareness and engagement.


Who Can Join the HADDS Squad?

  • Individuals of all ages living with EBF3-related HADDS or 10q26 deletion with support and consent of their parents / caregivers if the individual is under 18.


What do I do as part of the HADDS Squad?


The HADDS Foundation is looking for help and support with:


Storytelling & Awareness

  • Participate in storytelling for Foundation publications like the information packet, website content, social media, donor engagement, newsletters, and event promotion.

  • Submit photos and/or videos if requested to support the storytelling mentioned above.

  • Help answer questions or provide information requested by the Foundation for content such as blog posts when multiple perspectives would be beneficial.


Though optional, we would love it if HADDS Squad members could assist with:


Social Media Engagement

  • Share or repost Foundation content.


Events & Representation

  • Participate in virtual events such as HADDS in Motion and support fundraising events.

  • Engage with or welcome new families who reach out to the Foundation looking to connect directly with other families.

  • Assist as volunteers at the HADDS Conference if attending.

Volunteer Information

Diagnosis
EBF3 HADDS
10q26 Deletion Syndrome
Other
Official HADDS Foundation SQUARE .jpg

The EBF3 HADDS Foundation was created to promote awareness, research, and support for individuals and their families living with EBF3 HADD Syndrome, a genetic syndrome discovered in 2016.

 

The Foundation is a registered 501(c)(3).

EIN: 83-2757964

CONTACT >

E: info@hadds.org

 

Mailing Address:

PO Box 220052

343 S Kirkwood Rd Ste 105

St. Louis, MO 63122

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© 2021 by EBF3 HADDS FOUNDATION 

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