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2026 EBF3 HADDS International Conference Schedule

Get ready for an inspiring few days at the 2026 EBF3 HADDS International Conference – A Decade of Discovery! We are thrilled to share an incredible lineup of expert researchers, clinicians, specialists, and community presenters for this year's event.
 

New this year, Thursday afternoon features two concurrent tracks, a Child Track and a Teen & Adult Track, so you can choose the sessions most relevant to your family. If you can't decide, don't worry! These afternoon sessions will be recorded for registered attendees to watch after the conference or revisit later.
 

Several in-person sessions require advance sign-up as space is limited: the Q&A Breakout Sessions with Dr. Chao and Arden Wheeler, Schooling Students with HADDS: Learning from Parents’ Perspectives (Focus Groups) with Dr. Michael Barakat, and lab tours. Registration details will be emailed to in-person attendees before the conference. 

There is also a session for Schooling Students with HADDS: Learning from Parents’ Perspectives (Focus Groups) with Dr. Michael Barakat just for virtual attendees! Space is also limited for this session. Registration details will be emailed to virtual attendees.

As there will be discussion of unpublished research and protect the privacy of participating families the following sessions will not be recorded or posted to the Foundation's YouTube channel: Dr. Chao's Keynote, the Research Round Table, the Q&A Breakout Sessions and the Schooling Students with HADDS: Learning from Parents’ Perspectives (Focus Groups).

To view the schedule, select the conference date from the dropdown and click on any session below to view the presentation description and presenter biography. Be sure to check back before the conference, as a few final schedule updates may still be made!

All times shown are in  CDT (Central Daylight Time) UTC/GMT -5 hours.

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The EBF3 HADDS Foundation was created to promote awareness, research, and support for individuals and their families living with EBF3 HADD Syndrome, a genetic syndrome discovered in 2016.

 

The Foundation is a registered 501(c)(3).

EIN: 83-2757964

CONTACT >

E: info@hadds.org

 

Mailing Address:

PO Box 220052

343 S Kirkwood Rd Ste 105

St. Louis, MO 63122

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© 2021 by EBF3 HADDS FOUNDATION 

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