By: Ivette Sepersaude Today was the wrap of an informative and emotional conference. We leave here with a greater understanding of our...

By: Ivette Sepersaude Last night at the social we were able to connect further with other families. Dr. Chao, Dr. Wangler and some of the...

By: Ivette Sepersaude This trip to Houston is different. Kai has a lot of questions and is definitely more aware of his condition. On our...