2021 HADDS Awareness Month LARGE Banner.

Hypotonia, Ataxia, and Delayed Development 

Syndrome (HADDS) is a rare neurodevelopmental syndrome. HADDS generally affects the nervous system, muscle tone, speech, and general development.



We have a growing community of HADDS families that want to connect. Check out upcoming opportunities.

To enhance the lives of people with HADDS through research, education, support and advocacy.

There are so many ways to get involved with the HADDS Foundation. Take a look and see where you can best support the cause.

The EBF3-HADDS Foundation was created to promote awareness, research, and support for a rare genetic syndrome discovered in 2016. 

The Foundation is a registered 501(c)(3) EIN: 83-2757964 


P: (713) 487-6005

E: info@hadds.org


Mailing Address:

P.O. Box 31602

Houston , TX 77231

  • Grey Facebook Icon
  • Grey LinkedIn Icon
  • Grey Instagram Icon