Use these resources for distribution at community and fundraising events or for those recently diagnosed.
The HADDS Educational Packet is to be used for distribution to those newly diagnosed, healthcare providers and to others interested in learning more about the syndrome.
To order a printed copy of Understanding HADDS click here. It is a wonderful resource to reference, have on your coffee table or give to family members, therapist or physicians, etc.
The HADDS Quick Guide describes the syndrome, highlights the growing community and speaks to the ongoing research, and its long-term impact on our community. Translations in Arabic, English, German, Italian and Spanish.
Watch Dr. Chao, Dr. Wangler and Dr. Bellen discuss rare gene fruit fly/mice research and EBF3-HADDS.
After receiving a diagnosis, there are many questions and many revolve around understanding the genetics and the test results, so you can determine next steps. This webinar, hosted by Pilar Magoulas, MS, CGC, provides a brief genetics 101, details the types of genetic tests, how to read the results and answers a few common questions.
The Chao Lab has created a fantastic visual overview of what HADDS is and how it can display.
HADDS School Awareness Packet was designed for February's HADDS Awareness Month, but could be used year round. The packet has ideas and a checklist. Click for a video about HADDS for School age children.