HADDS Resources

Use these resources for distribution at community and fundraising events or for those recently diagnosed.

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The HADDS Quick Guide describes the syndrome, highlights the growing community and speaks to the ongoing research and it's long-term impact on our community. Translations in Arabic, English, German,  Italian and Spanish.

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HADDS School Awareness Packet was designed for February's HADDS Awareness Month, but could be used year round. The packet has ideas and a checklist.

Coming Soon in 2020!

A comprehensive HADDS Educational Packet is coming soon to be used for distribution to those newly diagnosed and/or interested in learning more.

The EBF3-HADDS Foundation was created to promote awareness, research, and support for a rare genetic syndrome discovered in 2016.

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© 2020 by EBF3 HADDS FOUNDATION