HADDS Resources

Use these resources for distribution at community and fundraising events or for those recently diagnosed.

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The HADDS Educational Packet is to be used for distribution to those newly diagnosed, healthcare providers and to others interested in learning more about the syndrome.

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The HADDS Quick Guide describes the syndrome, highlights the growing community and speaks to the ongoing research, and its long-term impact on our community. Translations in Arabic, English, German,  Italian and Spanish.

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Coming Soon in 2021!

This resource will help jumpstart fundraising efforts globally with a packet of ideas, logos and quick stats and facts about HADDS & the Foundation's work. 

HADDS School Awareness Packet was designed for February's HADDS Awareness Month, but could be used year round. The packet has ideas and a checklist. Click for a video about HADDS for School age children.

The EBF3-HADDS Foundation was created to promote awareness, research, and support for a rare genetic syndrome discovered in 2016. 

The Foundation is a registered 501(c)(3) EIN: 83-2757964 


P: (713) 487-6005

E: info@hadds.org


Mailing Address:

P.O. Box 31602

Houston , TX 77231

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