HADDS Resources

Use these resources for distribution at community and fundraising events or for those recently diagnosed.

HADDS one pager.jpg

The HADDS Quick Guide describes the syndrome, highlights the growing community and speaks to the ongoing research and it's long-term impact on our community. Translations in Arabic, English, German,  Italian and Spanish.

School Campaign!!.jpg

HADDS School Awareness Packet was designed for February's HADDS Awareness Month, but could be used year round. The packet has ideas and a checklist.

Coming Soon in 2020!

A comprehensive HADDS Educational Packet is coming soon to be used for distribution to those newly diagnosed and/or interested in learning more.

The EBF3-HADDS Foundation was created to promote awareness, research, and support for a rare genetic syndrome discovered in 2016.

  • Grey Facebook Icon
  • Grey LinkedIn Icon
  • Grey Instagram Icon