HADDS Down Under Mate!

Mallory Schindler, the Vice President of the EBF3 HADDS Foundation, interviewed the Willmer family of Toorbul, Queensland Australia. It was the first time the Willmers had met another HADDS community member in person! Louise and Denholm are the only known family with HADDS in Australia.


Check out the full interview on our YouTube channel!

https://youtu.be/7BMuLBb4Ewc







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The EBF3-HADDS Foundation was created to promote awareness, research, and support for a rare genetic syndrome discovered in 2016. 

The Foundation is a registered 501(c)(3) EIN: 83-2757964 

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E: info@hadds.org

 

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