The EBF3-HADDS Foundation was created to promote awareness, research, and support for a rare genetic syndrome discovered in 2016.

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© 2019 by EBF3 HADDS FOUNDATION 

News & Articles

2019

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A brother's love: Researching for a cure

Texas A&M University - 9/24/2019

https://engineering.tamu.edu/news/2019/09/a-brothers-love-researching-for-a-cure.html

 

Texas Children’s hosts inaugural family conference for EBF3-HADD syndrome

Texas Children's Hospital / NRI  - 8/26/2019

https://nri.texaschildrens.org/news/texas-children%E2%80%99s-hosts-inaugural-family-conference-ebf3-hadd-syndrome

Hazlet sixth-graders design motorized mini-car for 2-year-old with special needs

USA Today - App. - 4/16/2019

https://www.app.com/story/news/local/values/2019/04/16/hazlet-6th-graders-design-mini-car-2-year-old-special-needs/3436892002/

Dr. Hsiao-Tuan Chao named new McNair Scholar

Baylor College of Medicine - 3/13/2019

https://www.bcm.edu/news/awards-honors-faculty-staff/dr-hsiao-tuan-chao-named-new-mcnair-scholar

The EBF3-HADDS Foundation becomes an official 501c3 Non-Profit!

Easterseals is making a difference for kids and their families

WUSA Eye-9 News - 2/6/2019

https://www.wusa9.com/video/entertainment/television/programs/great-day-washington/easterseals-is-making-a-difference-for-kids-and-their-families/65-2d3d057c-abf2-4d99-904c-9e402bf1f251?fbclid=IwAR15zKTW6iRrOKo1Wy4IWL0L355nbITUFEKNvhjo72HGvQKe-WZuHQRAbjA

2018

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2019 Children's Miracle Network's 'Miracle Child' revealed

CBS-19 News - 11/27/18

https://www.cbs19.tv/article/news/local/2019-childrens-miracle-networks-miracle-child-revealed/501-618249310

16-month-old Tyler girl is ‘Miracle Child’ for Children’s Miracle Network hospitals

KLTV - News - 11/27/18

https://www.kltv.com/2018/11/27/month-old-tyler-girl-is-miracle-child-childrens-miracle-network-hospitals/

NIH's Undiagnosed Diseases Network Identifies 31 New Syndromes

BioSpace - 10/11/2018

https://www.biospace.com/article/nih-s-undiagnosed-diseases-network-identifies-31-new-syndromes/

Dr. Hsiao-Tuan Chao awarded NIH Director's High-Risk, High-Reward grant

Baylor College of Medicine - 10/2/2018

https://www.bcm.edu/news/grants/hsiao-tuan-chao-nih-high-risk-reward-grant

2017

How fruit flies helped to find a diagnosis for my daughter

Texas Children’s Hospital - 8/2/2017

https://nri.texaschildrens.org/blog/how-fruit-flies-helped-find-diagnosis-my-daughter

2016

Genetic cause identified for previously unrecognized developmental disorder

Science Daily - 12/23/2016

https://www.sciencedaily.com/releases/2016/12/161223115920.htm

HudsonAlpha researchers identify genetic variants that cause intellectual delay

HudsonAlpha Institute for Biomedical Technology - 12/22/2016

https://hudsonalpha.org/hudsonalpha-researchers-identify-genetic-variants-that-cause-intellectual-delay-in-children/

Genetic cause identified for previously unrecognized developmental disorder

Baylor College of Medicine - 12/22/2016

https://www.bcm.edu/news/research/genetic-cause-for-developmental-disorder