Dear HADDS Families: 

As you're aware, coronavirus (COVID-19) continues to impact our communities around the world. The health and safety of our families is our top priority and because of that, we have decided to cancel our upcoming Family Clinic Weekend in Houston, Texas in July. This was a very difficult decision, but one made thoughtfully and responsibly with the very best interests of our visiting families.  The HADDS Clinic has not been cancelled formally at this point, so any established appointment still stands unless you are otherwise notified.  However, the HADDS Foundation will not be planning organized activities during the weekend, as we do not want to encourage unnecessary travel to Houston for the foreseeable future.  

While we have decided to cancel this year's conference, we are actively planning our 2021 International Conference! Please watch for more information from us in the coming months. If you have already registered for the event, we will refund your registration fee.

If you have any questions or concerns, please contact us at  

The Social Clinic Weekend is Cancelled!

HADDS Clinic Days can be virtual on July 23 & 24.

Contact Texas Children's to schedule a session if you would

like to participate virtually. 




The EBF3-HADDS Foundation was created to promote awareness, research, and support for a rare genetic syndrome discovered in 2016.

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