Use the link below to register for the event!

Registration Fee: $125 per family

HADDS Clinic Days are July 23 & 24

Sponsored Social Clinic events will be held on the 23rd - 25th.



Hotel Information: 

Hilton Houston Plaza/Medical Center

2 Room Suite/1.5 Baths


Reduced Group Rate: $139/night

Use the link below to reserve your room at a reduced group rate*:


***The rooms reserved for our groups are suites!***



This spacious 66.8 sq. m./720 sq. ft., 2-room suite has a separate living area, complimentary WiFi, extra half bathroom and a 55" TV.

Feel at home in this suite, designed to give you added comfort and convenience. Settle down in the living area and watch on-demand-movies. Stay on top of business at the workstation and keep up-to-date with complimentary WiFi.

Chill drinks in the mini-refrigerator and sip a freshly brewed coffee from the coffeemaker. This suite has two double Hilton Serenity beds, a fold out sofa and a range of refreshing bath amenities.

*If you try to reserve a room and the block says it is full, please email and we will work with the hotel to open up more rooms. All Reservations have to be complete by July 1 to receive this rate.


Dear HADDS Families: 

As you're aware, coronavirus (COVID-19) continues to impact our communities around the world. The health and safety of our families is our top priority and because of that, we have decided to cancel our upcoming Family Clinic Weekend in Houston, Texas in July. This was a very difficult decision, but one made thoughtfully and responsibly with the very best interests of our visiting families.  The HADDS Clinic has not been cancelled formally at this point, so any established appointment still stands unless you are otherwise notified.  However, the HADDS Foundation will not be planning organized activities during the weekend, as we do not want to encourage unnecessary travel to Houston for the foreseeable future.  

While we have decided to cancel this year's conference, we are actively planning our 2021 International Conference! Please watch for more information from us in the coming months. If you have already registered for the event, we will refund your registration fee.

If you have any questions or concerns, please contact us at  

The EBF3-HADDS Foundation was created to promote awareness, research, and support for a rare genetic syndrome discovered in 2016.

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